Medical mystery

scotoma2

All of a sudden, my migraines have gotten much more frequent (six in the past month or so) and two of them occurred in the middle of the night. This morning, I woke up, dropped something on the floor, bent to pick it up and there it was: another migraine aura. Shit. And even though it’s gone now, I seem to have a bit of double vision after this one, which is a pain in the ass and has never happened before.

The kind of migraines I get are relatively rare (opthalmic migraines, with no head pain — although oddly, I had pain with the one last week) and so far, I haven’t found a doctor who specializes in them. I’m kind of tired of talking to doctors who only have the vaguest idea what I’m describing — “Talking Out My Ass” syndrome, in which they’re spitballing, rather than admit they don’t know. I read everything I can find on the topic and always know more than they do.

My big concern, as always, is that I’ve gone 20+ years with untreated Lyme disease, which is said to spread into the brain and heart. I did find a dedicated Lyme program at Johns Hopkins that just opened, and while I don’t fit the exact profile (they’re looking for relapsing Lyme patients who have been treated and I never have), maybe I can see someone who knows something.

Assuming my insurance will cover out-of-state consultation, that is.

Thank you

thankyou

I just wanted to say how much I appreciate the people who have supported the site with their donations: past, present and future. Every once in a while, someone cancels a monthly donation — and I promise, I’m not upset that you canceled, I only feel thankful for your past support. Your contributions have given me breathing space to the point where I can buy the large package of toilet paper, and not just a couple of rolls at a time.

Every time I run out of saline rinse or allergy pills, and I reach into my closet for a new one, I think of you guys. You’ve made it possible for me to live at a more comfortable distance from the edge.

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